Volunteers shared personal stories about life with CF while urging members of Congress to protect patients and progress.
Leaving everything behind to start over in another country was challenging. However, I never gave up on myself. My health has improved significantly over the past few years, and I am fulfilling my ...
When I realized I hadn’t fully processed what it was like to grow up with cystic fibrosis, I turned my experiences and feelings into a story to help me better understand them. What started as a ...
My son wasn’t diagnosed with CF until he was an adult and needed a lung transplant to save his life. He struggled to access the care he needed and ultimately passed away. I want his story to spark ...
A biorepository is a place, similar to a library or bank, where biological samples are stored for use in research. Since 2006, the Cystic Fibrosis Foundation has collected and stored samples from a ...
Cystic fibrosis has drastically changed in a single generation. Once seen as a pediatric disease, people with CF are now living into adulthood thanks to groundbreaking treatments and highly ...
Living with cystic fibrosis means constantly navigating the emotional and physical strain of waiting. Despite the exhaustion and uncertainty, waiting reminds us of our ability to endure in the face of ...
I was bullied at school because my cystic fibrosis made me different from my peers. However, my perspective shifted as I got older, and I learned to embrace the unique qualities that make me who I am ...
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